Halifax-People who have been diagnosed with a rare brain disease in New Brunswick say they have been in a difficult situation and have not yet heard of their diagnosis from public health officials.

It is believed that Roger Ellis has been suffering from a rare neurological disease for the past two years, but due to the mysterious nature of the disease, the 63-year-old has not yet received an official diagnosis. He is still waiting for his condition.

Roger’s son Steve lives in Halifax and has witnessed the deterioration of his father’s health. Due to the pandemic travel restrictions, he was unable to visit his father in New Brunswick. One year.

“Sometimes he is very repetitive, and cognitively very unfamiliar, sometimes we catch a glimpse of this old man,” Steve Ellis told CTV National News.

Ellis is one of 48 other patients in New Brunswick who are investigating the mysterious disease. Six people are known to have died from this disease.

Frustrated by the lack of available information, and eagerly waiting for public health to learn about his father’s condition, Ellis turned to social media to create an online resource where people with symptoms of the disease could connect with each other.

“We just want to stay informed, even if we don’t say much. Let us understand the situation.” Ellis said.

The Minister of Health of New Brunswick said that people should hear the voice of public health next week.

New Brunswick Health Minister Dorothy Shephard (Dorothy Shephard) said: “No information has been blocked and interviews will begin next week.”

As far as Ellis knows, the relatives of these 48 cases have not yet been contacted.

Those with suspected or confirmed cases of the disease live or live long-term in Moncton, North Africa or the Arcadia Peninsula. According to the province’s health department, these patients are between 18 and 85 years old.

Symptoms of unknown neurological syndrome include rapidly progressing dementia, muscle cramps and atrophy. Considering the population of New Brunswick people who may suffer from this disease, scientists are looking for the possibility that the disease is caused by food or the environment. Otherwise, little is known about this disease.

Many symptoms are similar to known diseases, such as Creutzfeldt-Jakob, Alzheimer’s disease, Parkinson’s disease and ALS. However, these diseases were ruled out in each case. The doctor said that this may be a new disease, but due to the number of cases spanning many years, there are still doubts.

Luc LeBlanc is one of the people who has recently received a positive case of the disease.

LeBron said: “This is actually just a time bomb, because you don’t know how long it will last.”

The 42-year-old two-year-old father said that he has more questions than answers. Since then, he turned to social media to learn more about his situation. He eventually established an online community for Ellis, able to talk about his situation publicly.

LeBron said: “I never found the answer I wanted, how to deal with or expand my life.”

New Brunswick health officials launched a website about the disease in April, and the province’s health minister stated that there is sufficient information online. The family members want the government to disclose the community where each case is located.

A special clinic has also been established, and neurologists from all over the country are studying everything from the environment to food to find possible causes of this mysterious disease.

-File from CTV Atlantic